A Hemophilia Treatment Center of Excellence
The mission of the Bleeding & Clotting Disorders Institute (BCDI) is to provide integrated, family-oriented care, treatment and education for persons with bleeding, blood clotting and other blood disorders.
BCDI is the only federally funded Hemophilia Treatment Center of Excellence south of Chicago. We draw patients from 15 states from physician, hospital and self-referrals throughout the "downstate" Illinois area.
People with bleeding disorders have found comfort at their Hemophilia Treatment Center for many years. Our team not only delivers state-of-the art medical care, but also offers tremendous emotional support to patients and families.
Advisory Meeting June 18th at 5:00
BCDI would like you to have the opportunity to talk to us about how we can assure we are delivering the highest standards of comprehensive and compassionate healthcare. Our quarterly meetings allow patients and their families to come together and share their needs and create ideas that might help the bleeding and clotting community.
This can also be a way to connect with families that have shared concerns and come together to create ideas that may have a positive impact on BCDI and the bleeding and clotting community.
There will be a conference line available if you can't make it in person. Please reach out to Marsha for details or contact her at Marsha@ilbcdi.org.
Dr. Tarantino Races to Raise Money for PDSA!
Dr. Michael Tarantino, Medical Director at BCDI rode in the 102 mile El Tour de Tuscon cycle race this past weekend. He rode to raise money for PDSA. This is Dr. Tarantino's 19th El Tour De Tuscon! It's important to him to raise money for PDSA. We are so proud of his devotion to helping this cause and always working to improve the lives of our patients! This year he raised over $1,500!
Dr. Roberts wins Illinois Cancer Care Rock Doc award!
Dr. Jonathan Roberts, Associate Medical Director at BCDI, was awarded the Rock Doc award for his ongoing hard work caring for his patients but, also for all the research he is continually doing to improve his patients health and help future patients.
Dr. Roberts has been active in research since the beginning of his career. In 2014 he won the Young Investigator Award from the International Society on Thrombosis & Haemostatis, in 2015-2016, he was honored with the Volunteer Faculty Distinguished Teacher Award from the U of I college of Medicine Peoria. More recently, in 2016 the International Society on Thrombosis & Haemostatis gave him the Young Investigator Award and the World Federation of Hemophilia Clinical Research gave him a grant for the VWF Functional Screening Assay for Discriminating the Phenotypic Variants of VWD.
His awards recognize his hard work but very close to his heart is all the research that he is involved with to help our patients. Currently., Roberts is the Institutional Principal Investigator on the comparative effectiveness for the diagnosis of VWD with Roberts Montgomery, MD and Thomas Abshire, MD at the Blood Center of WI Blood Research Institute.
He is currently working as the Principal Investigator on investigating a Von Willebrand Factor Functional screening assay for assigning the phenotypic variants of Von Willebrand Disease. These are just a couple of the several research opportunities Dr. Roberts is working on right now. He has completed several studies over the course of his career and looks to continue looking for ways to improve the lives of our patients. We are grateful for all of his work with our patients and in the area of research and very proud that he won the Rock Doc award!
No matter what insurance you have, it is time to review it!
This is the time of year to review your insurance plan and make sure that it is the best fit for you and your family's' needs.
Start 2019 knowing that your family has the right insurance. Here are a few important questions to ask when choosing a plan:
• Is your provider in network?
• Is factor covered?
• What is the deductible?
• Does the plan use an accumulator adjuster?
• What will the premium be?
• Does it cover emergency room care?
For more details on evaluating insurance plans and information you may want to review the insurance page:
You can also download the easy to use Health Plan Cost Comparison Worksheet. Click here: /filesimages/Health Plan Cost Comparison Worksheet.pdf
October is Physical Therapy Month!
Physical therapy can be of assistance as part of your complete healthcare plan. There are many ways it can be used to help a patient. Physical therapy can assist with modifying current activities to make them easier and may be able to help you with strength training to prevent bone loss and even may help with pain management. At the Bleeding and Clotting Disorders Institute we offer physical therapy for our patients as an optional part of their treatment. Talk to your hematologist about whether physical therapy at BCDI is appropriate for you!
BCDI's Drs. Tarantino And Roberts Were Published In The New England Journal Of Medicine
The article was published on September 26, 2018, about the outbreak of Synthetic Cannabinoid-Associated Coagulopathy in Illinois. It discusses the methods for testing the patients and learning what was causing the coagulopathy and the method of treatment using vitamin K to aid these patients.
Read full text here.
Thank you to Everyone who supported BCDI Trivia Night 2018!
A big thanks to our sponsors and all other partners!
Gold Sponsor - Shire
Silver Sponsors - Grifols, Octapharma, Novo Nordisk
Local Bronze Sponsor - Illinois CancerCare