A Hemophilia Treatment Center of Excellence
The mission of the Bleeding & Clotting Disorders Institute (BCDI) is to provide integrated, family-oriented care, treatment and education for persons with bleeding, blood clotting and other blood disorders.
BCDI is the only federally funded Hemophilia Treatment Center of Excellence south of Chicago. We draw patients from 15 states from physician, hospital and self-referrals throughout the "downstate" Illinois area.
People with bleeding disorders have found comfort at their Hemophilia Treatment Center for many years. Our team not only delivers state-of-the art medical care, but also offers tremendous emotional support to patients and families.
Bleeding Disorders Education Event Postponed
The Bleeding Disorders education event planned for Thursday evening, October 24, in Carbondale is going to be rescheduled. We apologize for any inconvenience this may cause.
Dr. Michael Tarantino will be presenting "A Comprehensive Approach to Hemophilia Care". Join us this Thursday, October 24th at 6:00PM at the Flame Bar and Grill in Carbondale, as part Bleeding Disorders Alliance of Illinois' learning series. Dinner will be provided for you and a guest. For more information or to sign up email Cindy at Cindy@ilbcdiorg.
The BCDI pharmacy will be closed on Friday, September 20th for staff meetings. Please submit any prescription requests by Wednesday, September 18th at 12:00 PM to ensure delivery prior to the weekend. For emergent needs on Friday, please call the BCDI main number and you will be rerouted to our call service. As always, the pharmacy team will be available Friday and throughout the weekend for emergent needs.
Patient Advisory Board Meeting
Tuesday, September 10th 2019 5:00 PM
BCDI Conference Room
9128 N. Lindbergh Dr., Peoria IL 61615
*Conference line is available for those unable to attend in person. Please contact Marsha Hurn (firstname.lastname@example.org) for details.
Are you interested in joining the BCDI Patient Advisory Board?
The board is composed of BCDI patients who are interested in helping BCDI find more ways to improve patient care. The board meets quarterly to discuss opportunities to further improve the patient experience and support the mission of BCDI.
To learn more about how you can become involved, please contact Marsh Hurn (email@example.com).
Labor Day Office Closed
The BCDI office and pharmacy will be closed on Monday, September 2nd in observance of Labor Day.
Pharmacy orders must be placed by 2:00 PM on Wednesday, August 28th to ensure delivery before the holiday. We will return to normal business hours of 7:30 AM - 4:30 PM on Tuesday, September 3rd.
As always, the entire BCDI team will be on call for any emergent needs. You can reach us at (309) 692-5337 during this time.
Patients and Families Enjoyed BCDI Family Day!
BCDI's family day was a day filled with education and advocacy for adults and teens living with bleeding and clotting disorders. Dr. Tarantino talked to patients about effective ways to communicate with your doctor and have the most effective appointments. He also talked about new therapies that can directly affect our patients and some options that may now or soon be available to them. Dr. Roberts covered an overview of research that is ongoing at BCDI and Dr. Jesudas talked about hypermobility and bleeding. Our little patients and family members were entertained with balloon twisting, face painting and crafts before dinner and the ball game.
Family Day is Sunday, August 11th!
Join us for a day of education, networking with other patients and an evening out at the ballpark. Care will be provided for children. Sign in starts at 1:30, sessions will go until 4:30 with dinner and the game following.
This is a free event for our patients and their families. For more information or to register, contact Cindy at 309-692-5337 or firstname.lastname@example.org.
Our office will be closed July 4th in honor of Independence Day. We will return to normal business hours of 7:30am-4:30pm on Friday, July 5th.
As always, we are on call for any emergent needs. Call us at (309) 692-5337 if you need to reach our or call. Thank you!
Thank you to everyone who participated in the 10th annual trivia night!
This year's event was a huge success, raising just under $71,000!
We appreciate the support and the money raised will go to help the 2020 scholarships and further the BCDI mission. We look forward to hosting you next year!
BCDI's Annual Trivia Night fundraiser is June 14th!
Join us at the Pere Marquette for a night of fun, education, and trivia. The night includes dinner, raffles, silent auction items and a beer and wine pull!! To register go to: https://ilbcdi.ejoinme.org/trivia2019
Our office will be closed Monday May 27th, in honor of Memorial Day. We will return to normal business hours of 7:30am-4:30pm on Tuesday, May 28th.
As always, we are on call for any emergent needs. Call us at (309) 692-5337 if you need anything. Thank you!
Advisory Meeting June 18th at 5:00
BCDI would like you to have the opportunity to talk to us about how we can assure we are delivering the highest standards of comprehensive and compassionate healthcare. Our quarterly meetings allow patients and their families to come together and share their needs and create ideas that might help the bleeding and clotting community.
This can also be a way to connect with families that have shared concerns and come together to create ideas that may have a positive impact on BCDI and the bleeding and clotting community.
There will be a conference line available if you can't make it in person. Please reach out to Marsha for details or contact her at Marsha@ilbcdi.org.
Dr. Tarantino Races to Raise Money for PDSA!
Dr. Michael Tarantino, Medical Director at BCDI rode in the 102 mile El Tour de Tuscon cycle race this past weekend. He rode to raise money for PDSA. This is Dr. Tarantino's 19th El Tour De Tuscon! It's important to him to raise money for PDSA. We are so proud of his devotion to helping this cause and always working to improve the lives of our patients! This year he raised over $1,500!
Dr. Roberts wins Illinois Cancer Care Rock Doc award!
Dr. Jonathan Roberts, Associate Medical Director at BCDI, was awarded the Rock Doc award for his ongoing hard work caring for his patients but, also for all the research he is continually doing to improve his patients health and help future patients.
Dr. Roberts has been active in research since the beginning of his career. In 2014 he won the Young Investigator Award from the International Society on Thrombosis & Haemostatis, in 2015-2016, he was honored with the Volunteer Faculty Distinguished Teacher Award from the U of I college of Medicine Peoria. More recently, in 2016 the International Society on Thrombosis & Haemostatis gave him the Young Investigator Award and the World Federation of Hemophilia Clinical Research gave him a grant for the VWF Functional Screening Assay for Discriminating the Phenotypic Variants of VWD.
His awards recognize his hard work but very close to his heart is all the research that he is involved with to help our patients. Currently., Roberts is the Institutional Principal Investigator on the comparative effectiveness for the diagnosis of VWD with Roberts Montgomery, MD and Thomas Abshire, MD at the Blood Center of WI Blood Research Institute.
He is currently working as the Principal Investigator on investigating a Von Willebrand Factor Functional screening assay for assigning the phenotypic variants of Von Willebrand Disease. These are just a couple of the several research opportunities Dr. Roberts is working on right now. He has completed several studies over the course of his career and looks to continue looking for ways to improve the lives of our patients. We are grateful for all of his work with our patients and in the area of research and very proud that he won the Rock Doc award!
No matter what insurance you have, it is time to review it!
This is the time of year to review your insurance plan and make sure that it is the best fit for you and your family's' needs.
Start 2019 knowing that your family has the right insurance. Here are a few important questions to ask when choosing a plan:
• Is your provider in network?
• Is factor covered?
• What is the deductible?
• Does the plan use an accumulator adjuster?
• What will the premium be?
• Does it cover emergency room care?
For more details on evaluating insurance plans and information you may want to review the insurance page:
You can also download the easy to use Health Plan Cost Comparison Worksheet. Click here: /filesimages/Health Plan Cost Comparison Worksheet.pdf
October is Physical Therapy Month!
Physical therapy can be of assistance as part of your complete healthcare plan. There are many ways it can be used to help a patient. Physical therapy can assist with modifying current activities to make them easier and may be able to help you with strength training to prevent bone loss and even may help with pain management. At the Bleeding and Clotting Disorders Institute we offer physical therapy for our patients as an optional part of their treatment. Talk to your hematologist about whether physical therapy at BCDI is appropriate for you!
BCDI's Drs. Tarantino And Roberts Were Published In The New England Journal Of Medicine
The article was published on September 26, 2018, about the outbreak of Synthetic Cannabinoid-Associated Coagulopathy in Illinois. It discusses the methods for testing the patients and learning what was causing the coagulopathy and the method of treatment using vitamin K to aid these patients.
Read full text here.
Thank you to Everyone who supported BCDI Trivia Night 2018!
A big thanks to our sponsors and all other partners!
Gold Sponsor - Shire
Silver Sponsors - Grifols, Octapharma, Novo Nordisk
Local Bronze Sponsor - Illinois CancerCare
Bleeding Disorders Alliance of Illinois learning series